I have already filled out the National Conversation on Rare Diseases Survey. We do not have to shy away from speaking openly about our experiences of a rare disease.
Let’s Talk About Rare Disease
Blog
A Poem For Parents
Here is a short poem I wrote for other parents of children who have special educational needs and disabilities, and who advocate for their child/children.
A Halloween Treat
I took my son out trick-or-treating this evening. My boyfriend bought my son a blue Halloween bucket for this year, which was much appreciated.
Own Identity
Having your own identity in life is incredibly important. … One way of having your own identity is through fashion.
Our First Visit To A Pumpkin Patch
It’s October, and my son had one wish this autumn holiday. He wanted to visit a pumpkin patch, so we did. We travelled close by to the Pumpkin Patch in Milton Keynes at Mount Mill Farm.
5 Creative Activities To Do This Halloween
A list of 5 Halloween activities to do over October Half Term. A lot of creativity and fun things to do.
