On 4th March, SNAP PCF hosted their second Parent Carer Forum Conference. SNAP PCF are an independent Parent Carer Forum who work in partnership with Central Bedfordshire Council and health care providers and are members of several strategic boards within Central Bedfordshire.
Autism Bedfordshire is a voluntary organisation founded in 1991, which provides emotional and practical support for families in the Bedfordshire and Luton areas. I am a member of Autism Bedfordshire, which is located in Bedford, Bedfordshire. Last December, I volunteered to take part in Autism Bedfordshire’s fundraising event: Cycle to Santa.
Today, 28th February 2019 is Rare Disease Day, a day where people with rare diseases are celebrated as well as raising awareness and improving knowledge of rare diseases.