Here is a short poem I wrote for other parents of children who have special educational needs and disabilities, and who advocate for their child/children.
So, what happened? I was exhausted and needed to take a break. I stopped myself, acknowledging that I was not entirely happy. I needed to take time away from all the noise.
I attended a local wellbeing workshop provided by Carers In Bedfordshire, which looked at how we connect, being active, taking notice, keep learning and giving. ...I visited my parents yesterday, and my dad went up their loft to bring down some of his artwork and my artwork from years ago.
It has been two years since my nan passed away from Alzheimer’s, and it is still something that I struggle with today. When my nan was alive, my mum made the ultimate sacrifice and gave up her job to become a full-time carer.
I smile so apparently that means that I have an easy life. I talk openly about my feelings, so that means that I’m complaining. I bottle up my feelings, meaning that I don’t care.