Here is a short poem I wrote for other parents of children who have special educational needs and disabilities, and who advocate for their child/children.
So, what happened? I was exhausted and needed to take a break. I stopped myself, acknowledging that I was not entirely happy. I needed to take time away from all the noise.
I attended a local wellbeing workshop provided by Carers In Bedfordshire, which looked at how we connect, being active, taking notice, keep learning and giving. ...I visited my parents yesterday, and my dad went up their loft to bring down some of his artwork and my artwork from years ago.
This week is Carers Week and is all about getting carers connected and ensuring that carers get the right support.
It has been two years since my nan passed away from Alzheimer’s, and it is still something that I struggle with today. When my nan was alive, my mum made the ultimate sacrifice and gave up her job to become a full-time carer.
Having a child who has a rare chromosome disorder and is on the autism spectrum, your life changes and you have new challenges to face. You have to learn to adapt to a new way of life and have a different perspective on your environment.
My son has always had issues with sleep ever since he was a baby. As a baby, I would have to stand up to rock him back to sleep. If I sat down to rock him, he would scream. I also used a baby bouncer but as soon as I stopped bouncing the chair, most times he would wake up
Emotions are linked with our 8th sense, interoception which is our inner ability to read our body’s signals. Have you ever heard of the expression: think with your head but follow your heart? Well, emotions, at times, can outweigh our logical thought process. So, understanding emotions can be difficult for someone, who is autistic.